Interactive Media

Genetics and Your Practice CD ROM. An interactive educational program and resource for providers. CME available. Developed by Institute for Child Health Policy and Washington State Dept. of Health in collaboration with March of Dimes and Maternal and Child Health Bureau, HRSA, U.S. Dept. of Health and Human Services. Order #09-1177-99 through March of Dimes (800)367-6630, $9.00.

Journal Articles

Collins FS, McKusick VA. Implications of the human genome project for medical science. JAMA 2001;285:540-4.

Collins FS. Shattuck lecture – medical and societal consequences of the human genome project. N Engl J Med 1999:341:28-37.

Emery J. Is informed choice in genetic testing a different breed of informed decision-making? a discussion paper. Health Expect 2001;4:81-86.

Geller G, Botkin J, Green M, et al. Genetic testing for susceptibility to adult-onset cancer. JAMA 1997;277(18):1467-1474.

Lander ES, et al. Initial sequencing and analysis of the human genome. Nature 2001; 409:860-921.

Parens E, Asch A. The disability rights critique of prenatal testing: reflections and recommendations. Hastings Cent Rep 1999;29(5):S1-22.

Press N, Browner CH. Risk, autonomy and responsibility. Informed consent for prenatal testing. Hastings Cent Rep 1995;25(3):S9-12.

Books

Baker, Diane L., Jane L. Schuette, Wendy R. Uhlmann, eds. A Guide to Genetic Counseling. John Wiley and Sons, 1998.

Bennett, Robin L. The Practical Guide to the Genetic Family History. Wiley-Liss, Inc., 1999.

Gelehrter, Thomas, Francis S. Collins, David Ginsburg. Principles of Medical Genetics. 2nd edition. Lippincott, Williams & Wilkins, 1998.

Holtzman NA, and MS Watson. Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing. The Johns Hopkins University Press, 1998.

Horwitz, Marshall. Basic Concepts in Medical Genetics. McGraw Hill, 2000.

Parens, Erik and A Asch, eds. Prenatal Testing and Disability Rights. Georgetown University Press, 2000.

Sack, George H. Medical Genetics. McGraw Hill Professional Publishing, 1998.

Touchette, Nancy, Neil A. Holtzman, Jessica G. Davis, Suzanne Feetham. Toward the 21st Century: Incorporating Genetics into Primary Health Care. Cold Spring Harbor Laboratory Press, 1997.